In October 2018, CFReSHC received a Cystic Fibrosis Foundation Impact Award Grant to hold monthly virtual meetings for women with CF to share experiences, identify research gaps, and formulate research questions.
Our project will have two aims:
- To leverage the experiential expertise of adult women with CF to advance CF-SRH research and care.
- To enable other chronic disease communities to adopt our programmatic structure to identify SRH research areas specific to their needs.
In October 2019, CFReSHC will begin a Cystic Fibrosis Renewal Grant to create a CF-SRH Resource Guide for providers and patients. Click here to see details of the project.
In May 2017, CFReSHC received a grant from the Patient Centered Outcomes Research Institute. CFReSHC proposes to introduce and support patient-centered outcomes research (PCOR) to the greater CF community. We will use existing PCOR training products and adapt them so that they address key issues related to researcher-
patient teams that solely engage online. We will create a best practices user guide for online engagement by performing
Objectives: This project will have two aims:
- Build capacity for PCOR knowledge and skills applicable for longitudinal online engagement
- Create and disseminate a best practices PCOR user guide for populations that solely engage online