A Partnership between Patients and Providers
All of our research uses patient-centered outcomes research (PCOR) methods. PCOR means that our patients are equal members of the research team at every step of the research process from ideas through dissemination.
Currently our research is funded by these active grants:
CF Foundation Impact Grant
In October 2018, CFReSHC received a Cystic Fibrosis Foundation Impact Award Grant to hold monthly virtual meetings for women with CF to share experiences, identify research gaps, and formulate research questions.
Our project had two aims:
- To leverage the experiential expertise of adult women with CF to advance CF-SRH research and care.
- To enable other chronic disease communities to adopt our programmatic structure to identify SRH research areas specific to their needs.
In October 2019, CFReSHC received a continuation grant to create a CF-SRH Resource Guide for providers and patients.
We are happy to announce this guide was published October 2020 and is now available online!
Patient Centered Outcomes Research Institute (PCORI) Eugene Washington Awards
PCORI:
- funds studies that improve outcomes important to patients.
- funds studies that can help patients and those who care for them make better-informed healthcare choices
- feels that all stakeholders–including patients–positively influence research.
The Eugene Washington PCORI Engagement Award program, promotes the inclusion of patients, caregivers, clinicians, and other healthcare stakeholders in the research process with the goal of building capacity to engage in patient-centered outcomes research (PCOR) and to help disseminate study results.
CFReSHC is committed to conducting projects that employ the principles of PCOR and promotes projects that include patient partners as equal members of the research team.
CF Foundation Pilot and Feasibility Awards
The CF Foundation provides pilot and feasibility awards to support basic science research studies focused on developing and testing new hypotheses in areas relevant to cystic fibrosis. One common theme during PTF meetings focused on hormones and how they may or may not impact CF symptoms.
The CFF Pilot and Feasibility Award enables CFReSHC to continue its mission by translating a patient priority into a viable research study.