PCORI Eugene Washington Award


In May 2017, CFReSHC received a grant from the Patient Centered Outcomes Research Institute. CFReSHC proposes to introduce and support patient-centered outcomes research (PCOR) to the greater CF community. We will use existing PCOR training products and adapt them so that they address key issues related to researcher-
patient teams that solely engage online. We will create a best practices user guide for online engagement by performing

Objectives: This project will have two aims:

  • Build capacity for PCOR knowledge and skills applicable for longitudinal online engagement
  • Create and disseminate a best practices PCOR user guide for populations that solely engage online

PCOR Training Resources

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