Shaping the future for women with CF
The Cystic Fibrosis Reproductive and Sexual Health Collaborative supports patient-centered conversations about issues that impact women with CF.
CFReSHC (Say it like “C-Fresh”)
Vision
Our collaborative engages women with Cystic Fibrosis (CF) as equal partners with clinicians and researchers to develop patient-driven research projects.
Mission
Patient-Partners (Women with CF) work with CF clinicians, researchers, and other advocates to improve sexual and reproductive health resources, healthcare, and knowledge for women with CF.
Why Women with CF?
As women with CF enter new life phases they have more questions than answers. CFRESHC examines the pertinent issues facing CF women such as: body image, family building, pregnancy, motherhood, infertility, hormone changes, incontinence, menopause and more.
A Partnership between Patients and Providers
Women with CF are entering uncharted territory, as they are living longer than ever before. Our unique collaborative of patients and doctors is working to educate clinicians about the variety of issues that affect adult females with CF.
The CF Reproductive and Sexual Health Guide
Written by patients and for the whole CF community to educate clinicians and patients about issues that affect adult females with CF and to facilitate conversations between health care providers and patients.
Announcements
Our latest Patient Task Force meetings and upcoming events.
Heart Health PTF – May 23
May 23, 2022
2-4p EST
Special Event: Pelvic Floor Workshop with Beam – May 10
May 10, 2022
5-7pm EST
Want to learn more? Send an e-mail here.
Subscribe to the Newsletter
Want to stay informed of our findings and be first to know when we add new sections to the guide? Subscribe here for email updates about our collaborative and research.