The goal of our patient task force is to improve the sexual and reproductive health (SRH) for those with CF. We hold interactive virtual meetings where experts offer a presentation on a variety of SRH topics followed by breakout sessions to identify and prioritize research priorities.
Sharing the Patient Experience
Many important questions about female reproductive and sexual health remain unasked, and have historically not been addressed as part of routine CF care. But it’s important to know, you are not alone in this.
The patient perspective is invaluable in helping clinicians and researchers understand what women with CF face. Many women do not know that symptoms they experience may be related to CF, or their CF medications. Plus, drug trials often are unable to adequately answer questions about female reproductive health beyond basic safety. Together, patients and clinicians can help to set standards of care and create guidance for conversations about these important yet sensitive topics.
Our Meetings:
CFReSHC hosts two hour Patient Task Force meetings to discuss CF-SRH related topics. We engage virtually to comply with cross infection guidelines and to allow participants to attend regardless of their time zone.
PTF Meetings:
- Furnish evidence based, extant information about CF-SRH topics provided by knowledgeable presenters.
- Build community and support by providing a space for sharing personal experiences.
- Establish a forum for open discussions on sensitive topics.
- Allow women to articulate their needs for further research
- Promote the improvement of SRH-related standards of care.

Heart Health PTF – May 23
May 23, 2022
2-4p EST
Previous Meeting Topics
Special Event: Pelvic Floor Workshop with Beam – May 10
May 10, 2022
5-7pm EST
Possible Pregnancy Outcomes in CF PTF – April 12
April 12, 2022
1-3 PM EST
Dating and Relationships PTF – March 25
March 25, 2022
1-3 PM EDT
Sleep Health PTF – March 15
March 15, 2022
1-3 PM EST
Menopause – Integrative Medicine Joint Patient Meeting
May 25, 2021
2-4 PM Eastern time
Low Libido
April 28, 2021
1:00-3:00 PM EDT