CFReSHC is a collaborative of patients, clinicians, and researchers working together to improve the sexual and reproductive health (SRH) knowledge, resources, and standards of care for people with CF.

Our Mission is to complete patient-engaged research through partnerships with people with CF, researchers, and advocates. Our research will respond to the health needs of the CF community, provide data for healthcare professionals, and ultimately pave the way for improved reproductive and sexual health resources, healthcare, and knowledge for people with CF.

How we are different:

​Typically, researchers develop research questions, solicit funding, and conduct research without patient input. CFReSHC uses the principles of patient-engaged outcomes research (PCOR), where people with CF are active participants throughout the entire research process: from identifying research priorities and questions, to participating in project design and grant writing, to study implementation and dissemination.

What we do:

We hold meetings for people with CF. Our meetings provide an expert speaker who offers a presentation on a focus topic and takes questions from the audience. Afterward, attendees discuss the focus topic in structured break out groups. This gives attendees the opportunity to share their stories in a supported environment while also enabling patient participation in the research process through identifying and prioritizing research priorities.

What we will do:

We will build a Patient-Driven PCOR Lab for Transdisciplinary Team Research (LeTTR; Lab for establishing Transdisciplinary Team Research). Lab stakeholders will translate patient-generated research questions into studies designed and executed by transdisciplinary research teams that include patient partners throughout the research process.