Self care is Advocating for Yourself and Listening to Your Body, by Anna Payne
For 34 years, I never really practiced self care. I did my treatments and took my pills, but I never really considered that self care was more than just something I had to do. I constantly put the needs of others above my own. But that all changed in July of 2021,...
New CFReSHC Partnership with CFLF
In 2022, we partnered with the Cystic Fibrosis Lifestyle Foundation (CFLF) and received an Impact Grant from the CF Foundation to provide meetings on sexual and reproductive health issues for those assigned male at birth with CF over the age of 18. We plan to hold...
I’m Not Food Insecure, OH WAIT?!?
I was recently involved in a research study with the University of Alabama-Birmingham that discussed food insecurity and other financial challenges faced by members of the CF community. Going into this study, I truly did not believe I had any food insecurities,...
CFReSHC is on YouTube!
CFReSHC is on YouTube! Click here to see all of the presentation portions of our previous Patient Task Force Meetings, and be sure to subscribe to see all of the upcoming recordings too!
“Be Sure to Take It with Some Fats:” How Modulators Can Require Changes in CF Diets
The week I started Trikafta, I experienced an unexpected side effect: constipation. I soon learned that I was an outlier patient, and that I needed to reduce my digestive enzyme dosage due to the drastic effect of the modulator on my gastrointestinal system. I learned...
NACFC 360 Workshop: Emerging Weight Management Topics in CF
Heart Health and CF: Community Experiences
Yes, I Have Incontinence
A Miracle Baby, Not Brought About By Modulators
