CFReSHC’s Alicia Casals joined the CF NACFC 360 workshop, “Emerging Weight Management Topics in CF,” and provided us with some takeaways. Read her full summary here
Patient Task Force
PTF Meeting Summary: Pelvic Floor Workshop with Beam
On May 10, CFReSHC and Beam collaborated to bring members a Pelvic Floor Workshop, led by Musculoskeletal Physiotherapist and Pilates Instructor with cystic fibrosis, Lizzie van Dongen. Read the full summary here: here.
Heart Health and CF: Community Experiences
CFReSHC’s own Georgia Brown and Jennifer Kyle share their stories about heart health. Read the full blog here.
Heart Health PTF – May 23
May 23, 2022
2-4p EST
Yes, I Have Incontinence
Georgia Brown shares her experience with incontinence. Read the full blog here.
Special Event: Pelvic Floor Workshop with Beam – May 10
May 10, 2022
5-7pm EST
PTF Meeting Summary: Possible Pregnancy Outcomes with CF
On April 12, 2022, Pulmonary Critical Care nurse practitioner Jana Yeley from Indiana University, discussed possible pregnancy outcomes when you have CF. Read the full summary here.
A Miracle Baby, Not Brought About By Modulators
Our social media manager, Alicia Casals, shares her pregnancy story with us. Read the full post here.
Possible Pregnancy Outcomes in CF PTF – April 12
April 12, 2022
1-3 PM EST
PTF Meeting Summary: Dating and Relationships with CF
On March 25, 2022, Dr. Lily Christon, psychologist from the Medical University of South Carolina, presented about navigating dating and relationships when you have CF. Read the full summary here.