In 2022, we partnered with the Cystic Fibrosis Lifestyle Foundation (CFLF) and received an Impact Grant from the CF Foundation to provide meetings on sexual and reproductive health issues for those assigned male at birth with CF over the age of 18. We plan to hold...
PTF Meeting Summaries
I was recently involved in a research study with the University of Alabama-Birmingham that discussed food insecurity and other financial challenges faced by members of the CF community. Going into this study, I truly did not believe I had any food insecurities,...
Psychological and Social Impact of being a Female with CF Living with a Disability – Workshop Sept 13
On August 5th, 2022, Registered Dietician Julianna Bailey from the University of Alabama-Birmingham School of Medicine, discussed her recent study looking at CFTR Modulators and Nutrition. Read the full summary here.
CFReSHC is on YouTube! Click here to see all of the presentation portions of our previous Patient Task Force Meetings, and be sure to subscribe to see all of the upcoming recordings too!
The week I started Trikafta, I experienced an unexpected side effect: constipation. I soon learned that I was an outlier patient, and that I needed to reduce my digestive enzyme dosage due to the drastic effect of the modulator on my gastrointestinal system. I learned...
On Monday, May 23, 2002, Dr. Jennifer Goralski, Associate Director of the UNC Adult Cystic Fibrosis Center gave a presentation about heart health and CF. Read the full summary here.
CFReSHC’s Alicia Casals joined the CF NACFC 360 workshop, “Emerging Weight Management Topics in CF,” and provided us with some takeaways. Read her full summary here
On May 10, CFReSHC and Beam collaborated to bring members a Pelvic Floor Workshop, led by Musculoskeletal Physiotherapist and Pilates Instructor with cystic fibrosis, Lizzie van Dongen. Read the full summary here: here.