CFReSHC is on YouTube! Click here to see all of the presentation portions of our previous Patient Task Force Meetings, and be sure to subscribe to see all of the upcoming recordings too!
Sexuality
“Be Sure to Take It with Some Fats:” How Modulators Can Require Changes in CF Diets
The week I started Trikafta, I experienced an unexpected side effect: constipation. I soon learned that I was an outlier patient, and that I needed to reduce my digestive enzyme dosage due to the drastic effect of the modulator on my gastrointestinal system. I learned...
Modulators and Nutrition PTF – Aug 5
Aug 5th
3-5p EST
PTF Meeting Summary: Heart Health and CF
On Monday, May 23, 2002, Dr. Jennifer Goralski, Associate Director of the UNC Adult Cystic Fibrosis Center gave a presentation about heart health and CF. Read the full summary here.
NACFC 360 Workshop: Emerging Weight Management Topics in CF
CFReSHC’s Alicia Casals joined the CF NACFC 360 workshop, “Emerging Weight Management Topics in CF,” and provided us with some takeaways. Read her full summary here
PTF Meeting Summary: Pelvic Floor Workshop with Beam
On May 10, CFReSHC and Beam collaborated to bring members a Pelvic Floor Workshop, led by Musculoskeletal Physiotherapist and Pilates Instructor with cystic fibrosis, Lizzie van Dongen. Read the full summary here: here.
Heart Health and CF: Community Experiences
CFReSHC’s own Georgia Brown and Jennifer Kyle share their stories about heart health. Read the full blog here.
Heart Health PTF – May 23
May 23, 2022
2-4p EST
Yes, I Have Incontinence
Georgia Brown shares her experience with incontinence. Read the full blog here.
Special Event: Pelvic Floor Workshop with Beam – May 10
May 10, 2022
5-7pm EST